Resource Library

Welcome to the NewSTEPs resource library! This tool incorporates all resources archived on the NewSTEPs website, which can be filtered below by disorder, type and topic. Submissions of additional resources are encouraged and accepted as the library continues to grow. Please direct any submissions to newsteps@aphl.org.

Saved Resources

All Resource

All Resources

Webinars

SCID National Quarterly Webinar: April 2017

April 16, 2017

Webinars

SCID National Quarterly Webinar January 2017

January 22, 2017

Presentations

Diagnosis and Short-Term Follow-Up (STFU) of Severe Combined Immunodeficiency (SCID) Cases found by TREC Newborn Screening (NBS)

January 01, 2017

Webinars

Highlights from Subawardees Severe Combined Immunodeficiency (SCID) Implementation Experiences (Maryland, Kentucky, Hawaii), Following Infants with Low Lymphocytes (FILL) Project

September 30, 2016

Webinars

Abnormal TREC in Premature Infants and Postnatally

June 30, 2016

Webinars

Non-Medical Care Survey for Patients with Primary Immunodeficiency Disease; Utah's Newborn Severe Combined Immunodeficiency (SCID) Screening Implementation Experience

May 31, 2016

Webinars

Severe Combined Immunodeficiency (SCID) Publications Update; Maryland and Kansas' SCID Screening Implementation Experiences

April 30, 2016

Publications

Cost-Effectiveness/ Cost-Benefit Analysis of Newborn Screening (NBS) for Severe Combined Immune Deficiency (SCID) in Washington State

May 01, 2016